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#31
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I know. And all those years I could run around like a loon, even with
steroids, I couldn't keep weight on. Me too. At 5' 7" I frequently dipped into a size 6 (even a 4). It wasn't pretty. ~~ Sooz ------- "Those in the cheaper seats clap. The rest of you rattle your jewelry." John Lennon (1940 - 1980) Royal Varieties Performance ~ Dr. Sooz's Bead Links http://airandearth.netfirms.com/soozlinkslist.html |
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#32
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snort
"Sooz is high... time to do laundry!" Ah, younger days! Haw! Yup. I used to take all her vintage dresses -- with all the intricate detail -- and make them perfect. Then she'd wear 'em all, and back into the loop we'd go. ~~ Sooz ------- "Those in the cheaper seats clap. The rest of you rattle your jewelry." John Lennon (1940 - 1980) Royal Varieties Performance ~ Dr. Sooz's Bead Links http://airandearth.netfirms.com/soozlinkslist.html |
#33
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Is
exhaustion part of it? I'm so tired I could just scream but it's too much effort. Oh YES. Managing pain is incredibly exhausting. (No one ever tells you this.) Which is one of the reasons you feel better with painkillers -- it's far less tiring! Pain is so DRAINING. "Tired" doesn't begin to cover it. ~~ Sooz ------- "Those in the cheaper seats clap. The rest of you rattle your jewelry." John Lennon (1940 - 1980) Royal Varieties Performance ~ Dr. Sooz's Bead Links http://airandearth.netfirms.com/soozlinkslist.html |
#34
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YES! Pain is exhausting. Both physically and mentally. This is why Sooz
emphasizes the importance of reducing pain quickly. When I talk about Depression, I often tell people to imagine a 3 year old being taken shopping for 5 or 6 hours. She'll get physically and mentally tired from all the new information, all the standing quietly, etc. And her symptoms will be very much the same as Depression -- anger, weeping, unable to think clearly, sleep disturbance, etc. So yes, pain is not only exhausting, but it also results in Depression. Tina "Debbie B" wrote in message ink.net... I know. I'm waiting for my appt. on the 26th with my neurologist. Is exhaustion part of it? I'm so tired I could just scream but it's too much effort. -- Debbie (New Mexico) Life is too short "Dr. Sooz" wrote in message ... Debbie, avoiding meds for the pain isn't therapeutic. Trust me, I know. ~ Enduring pain as a virtue is a myth. It's very bad for your body, and your health. It creates more stress, which in turn creates worse health. ~ If you put up with pain, feeling it instead of masking it, you can end up with fibromyalgia or other neurological problems. It's pointless to suffer, unless you want to get sicker. It's better for you, long term and short term, to be a bit woozy than in pain. ~ If you don't take the meds at the first onset of the pain, it doesn't work very well. You should take them at the first hint. Being "tough" about one's pain is not wise. It's a myth perpetuated for years and years, based on this country's Puritan founders' views. And those people were crazy! Do you really want to do that? Be crazy? Plus, people in pain are very hard on the ones who love them. If you won't do it for yourself, do it for those around you. maybe I could walk and laugh more. ~~snipped~~ haven't even taken any meds for the pain. lol ~~ Sooz ------- "Those in the cheaper seats clap. The rest of you rattle your jewelry." John Lennon (1940 - 1980) Royal Varieties Performance ~ Dr. Sooz's Bead Links http://airandearth.netfirms.com/soozlinkslist.html --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.682 / Virus Database: 444 - Release Date: 5/13/2004 |
#35
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That is soooo funny!
-Kalera http://www.beadwife.com http://www.snipurl.com/kebay Dr. Sooz wrote: snort "Sooz is high... time to do laundry!" Ah, younger days! Haw! Yup. I used to take all her vintage dresses -- with all the intricate detail -- and make them perfect. Then she'd wear 'em all, and back into the loop we'd go. ~~ Sooz ------- "Those in the cheaper seats clap. The rest of you rattle your jewelry." John Lennon (1940 - 1980) Royal Varieties Performance ~ Dr. Sooz's Bead Links http://airandearth.netfirms.com/soozlinkslist.html |
#36
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Oh god. I hope you get something that helps a lot! It's horrible that
you just have to live with it that long. -Kalera http://www.beadwife.com http://www.snipurl.com/kebay Debbie B wrote: I know. I'm waiting for my appt. on the 26th with my neurologist. Is exhaustion part of it? I'm so tired I could just scream but it's too much effort. |
#37
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I am SO glad you're not in pain anymore!
-Kalera http://www.beadwife.com http://www.snipurl.com/kebay Jalynne wrote: AMEN, sister. Now that I have no pain...the weight is coming off with very little effort. GEEEE, i wonder why that is??? (dripping sarcasm included for emphasis) |
#38
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Oh my GOD I hope they can help! And I wish you didn't have to wait so
long... and why exactly is your case considered non-critical??? -Kalera http://www.beadwife.com http://www.snipurl.com/kebay Kathy N-V wrote: I know. And all those years I could run around like a loon, even with steroids, I couldn't keep weight on. (Except in the boobage - I am cursed) But Bam - after the heart attack, and the sudden worsening of my osteoporosis, and all the broken vertebrae, I can't move around. I cut my food intake sharply, but since I can't eat negative food, I am having all the Cushingoid symptoms of anyone on long term steroid use. Duh. Let's see what happens after I see the surgeon (in June) and the Pain Specialist (in August). These folks are supposed to be geniuses at what they do, and they have long waiting lists for non-critical cases. Kathy N-V |
#39
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Um, ouch. I'm 5'3" and at size 6 I was almost skeletal.
"Pointier than a sack full of wet mice" as a friend says. -Kalera http://www.beadwife.com http://www.snipurl.com/kebay Dr. Sooz wrote: I know. And all those years I could run around like a loon, even with steroids, I couldn't keep weight on. Me too. At 5' 7" I frequently dipped into a size 6 (even a 4). It wasn't pretty. ~~ Sooz ------- "Those in the cheaper seats clap. The rest of you rattle your jewelry." John Lennon (1940 - 1980) Royal Varieties Performance ~ Dr. Sooz's Bead Links http://airandearth.netfirms.com/soozlinkslist.html |
#40
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Listen to the dietician... as my dad says, doctors kill people.
Forget the weight, as weight is not a good measure of health. (I am not anti-doctor, but they really have little experience managing health, only illness.) -Kalera http://www.beadwife.com http://www.snipurl.com/kebay Shirley Shone wrote: I totally agree with you Kalera. The dietician says I do not eat enough. The doctor tells me to lose weight. The dietician says if I eat less I could suffer from malnutrition. If I exercise I could have a heart attack. I have meds to slow me down. So I have not a cat in hells chance of losing weight. It is like running around in a circle, no end to it. Shirley In message , Kalera Stratton writes Argh, this made me mad. Why don't people understand that people with illnesses and handicaps that make them unable to be active get fat because they CAN'T ****ING EXERCISE? And often have to take pills that make them gain weight? "Oh, yeah honey, just get out there and take that weight off!" 'Cause clearly you're be capable of going for a daily jog, right? -Kalera http://www.beadwife.com http://www.snipurl.com/kebay Kathy N-V wrote: On Fri, 14 May 2004 19:43:24 -0400, Jan G wrote (in message . net): Kathy, great news! What do you think helped the most? The meds? A combination of things - meds, PT, a little weight loss and lots of powerful vibes from the people here on RCB. Amazingly, I wrote this last week, when I think I hit my lowest point: ----------------------- The reality of my life is that I often have to crawl to get upstairs, and pay for even the slightest exertion with days of pain. Or, I can take the painkillers and be zoned out, those are my choices. I've gotten a lot tougher - pain that would have made me cry years ago barely registers in my consciousness these days. I spent a day with [a friend] a couple of weeks ago - and spent five days in bed afterward, because I couldn't even walk to the other end of the house It infuriates me to have people who have no idea what it's like to live in my skin tell me that I need to lose weight. Think I don't know that? Think I don't cringe when I see myself in the mirror and compare it to the person I used to be? What magic wand can I wave to make it possible for me to walk up the thirteen steps to my house? Forget running a marathon - I'd like to be to sit through one of DD's school presentations. Once I gain that much progress, I'll worry about losing weight, okay? ---------------------------- That was in response to someone telling me that I "need to get active and take off those pounds. Just stop eating so damn much." She didn't get it. I've been on heavy duty steroids for more than 20 years, and am 100 lbs. heavier than my pre-steroid weight. I used eat everything in sight back then, and never gained an ounce. Now, I eat one meal a day, because the pain makes me nauseated most of the time. If I stop the steroids, I die - period. Not too many choices there - I'll walk through burning coals to be there while my daughter grows up. I suspect that DD thinks that having a fat mother is way better than having a dead one. Being there for my family is my sole motivation. I'm a little sore tonight - I had to test my new meds by driving a couple of miles, because Bob is out of town. But I've been able to skip the Vicodin for three days, and that's wonderful. Even if it doesn't last, this respite has been wonderful. It's like a beautiful sunny day after a long, long winter. Kathy N-V |
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