Ping Karen re fibromyalgia

My dr has suggested cymbalta as it has shown in studies to help the pain
associated with fibromyalgia. Have you any experience with this
medication or have you heard anything good or bad re its effect in
treating fibromyalgia
Thanks
ruby )

Ruby wrote:
My dr has suggested cymbalta as it has shown in studies to help the pain
associated with fibromyalgia. Have you any experience with this
medication or have you heard anything good or bad re its effect in
treating fibromyalgia
Thanks
ruby )
I'm using cymbalta and Lyrica for treatment of my fibro. If cymbalta is
going to work, you should notice improvement within 3 weeks. Start with
a one month trial. Lyrica should be in a 300mg-600mg range for treatment
of fibro. GP's often use too low a dose for fibro. This is the
information I was given by the pain clinic. I still have flareups, but I
am able to work 4 days a week on this regimen.


Contact me by private email if you want more information.

Bobbie V.

remove the knot with a net to reply.

Ruby wrote:

My dr has suggested cymbalta as it has shown in studies to help the pain
associated with fibromyalgia. Have you any experience with this
medication or have you heard anything good or bad re its effect in
treating fibromyalgia
Thanks
ruby )


I haven't tried it. I've heard good and bad; it helps, but some people
have such side effects they can't take it.

Warning Lyrica -- something in it makes it very attractive to pets.
It goes directly from the bottle to your mouth, no exceptions, or
you'll get an expensive vet bill. We've heard several reports of "I
just set it down on the counter for a second and it was in Fluffy's mouth".


--
Karen C - California
Editor/Proofreader www.IntlProofingConsortium.com

"On his tombstone, Benjamin Franklin wanted it said not that he had been
rich
but rather that he had been useful."

Finished 10/7/08 - Sun Fun (Dimensions)

WIP: Nativity from "Countdown to Christmas" book, Oriental Kimono
(Janlynn),
MLI The Teacher (gift to the library), Bethany Angel (Marbek)
Retrieved from UFO pile: Marbek's Snow Angel, MLI Farmers Market

CFSfacts -- where we give you the facts and dispel the myths
Myths, with research cites: http://www.aacfs.org/images/pdfs/myths.pdf
Newest research blog: http://cfs-facts.blogspot.com/

Jangchub wrote:

Not trying to scare anyone, but new drugs should be used for a decade
before FMS people should start taking them. In my case I am in
constant pain, even to touch my skin I cringe (my poor husband) and I
will not try Cymbalta or Lyrica, though it was offered. I'll wait. I
am not going to be their test dummy. These drugs are tested under
very controlled systems, but not realistic systems.



That's kinda where I'm at, too.

My doctor's mantra is "all drugs have side effects ... some you may not
see for 30 years". Since I have so many drug reactions to begin with,
it's always dicey to give me something new-to-me, without adding in new
to the marketplace.

The sleeping pill clinical trial, I thought, was worth the risk. I was
half-dead from lack of sleep, so do you want to die of trying something
new or die of doing nothing about the problem? It was a close relative
of Ambien, which had enough history to reassure me (and the doc) of its
likely safety. The side effects were disabling in their own right, but
for the first time in years I was sleeping, so I put up with them for
the duration, and I'm glad I did because of the end result.

At the beginning of the trial, I was like you, it hurt just to exist; I
spent a lot of time in a hot bath for what relief that gave me. After
the good effects of sleeping again -- after the clinical trial ended, I
switched to a Sleep Number bed, which helped a lot, too -- now most of
the year the fibromyalgia is down to a dull roar. Since we can now
manage the pain with old tried-and-true stuff, we didn't see the need to
risk Cymbalta or Lyrica for now. When straight pain pills stop working,
then we'll discuss them again; by then, Doc will have more idea of their
downsides so we can make a more informed decision.


--
Karen C - California
Editor/Proofreader www.IntlProofingConsortium.com

"On his tombstone, Benjamin Franklin wanted it said not that he had been
rich
but rather that he had been useful."

Finished 10/7/08 - Sun Fun (Dimensions)

WIP: Nativity from "Countdown to Christmas" book, Oriental Kimono
(Janlynn),
MLI The Teacher (gift to the library), Bethany Angel (Marbek)
Retrieved from UFO pile: Marbek's Snow Angel, MLI Farmers Market

CFSfacts -- where we give you the facts and dispel the myths
Myths, with research cites: http://www.aacfs.org/images/pdfs/myths.pdf
Newest research blog: http://cfs-facts.blogspot.com/

Jangchub wrote:

This whole
thing sucks. Period.
Victoria



Amen to that, sister.

I've talked to a local pain management specialist (he was giving a free
lecture), and he points out that only 1% of patients become addicted to
pain pills, and most of that 1% can be identified in advance because
they have addictive personalities. He made a distinction between
"addicted to" and "reliant on", i.e., you'd never say a diabetic was "an
insulin addict".

I can get through the day with heating pads, ThermaCare, hot bath, etc.;
I take the pain pill only at bedtime when you shouldn't have a heating
pad turned on (and I've blistered when a ThermaCare bunched up and got
too hot while I was asleep, so I see why they say not to use those while
you sleep).

Since the pain mgmt specialist costs an arm and a leg, I've been saving
him as my ace in the hole. However, my PCP has told me from the very
first appointment that when the pain is the only thing standing between
me and working, then he'll prescribe a pain pill, but he prefers to use
the lowest-impact/natural approach wherever possible. Now I can go in
and tell him that Vicodin lets me work the next day, which the sleeping
pill does not, and that may be what convinces him to take that next step up.

--
Karen C - California
Editor/Proofreader www.IntlProofingConsortium.com

"On his tombstone, Benjamin Franklin wanted it said not that he had been
rich
but rather that he had been useful."

Finished 10/7/08 - Sun Fun (Dimensions)

WIP: Nativity from "Countdown to Christmas" book, Oriental Kimono
(Janlynn),
MLI The Teacher (gift to the library), Bethany Angel (Marbek)
Retrieved from UFO pile: Marbek's Snow Angel, MLI Farmers Market

CFSfacts -- where we give you the facts and dispel the myths
Myths, with research cites: http://www.aacfs.org/images/pdfs/myths.pdf
Newest research blog: http://cfs-facts.blogspot.com/

On Nov 18, 12:49 am, Karen C in California wrote:


I can get through the day with heating pads, ThermaCare, hot bath, etc.;
I take the pain pill only at bedtime when you shouldn't have a heating
pad turned on (and I've blistered when a ThermaCare bunched up and got
too hot while I was asleep, so I see why they say not to use those while
you sleep).

I have found that nothing beats a plain old fashioned hot water
bottle. I think I would have killed someone without mine after my
surgery last year. I sent DH home to get it after they took the hot
towels away and it made all the difference. AND you can sleep with
one (or two - I have one for my feet and one for my hands on cold
nights).

Elizabeth

wrote in message
...
On Nov 18, 12:49 am, Karen C in California wrote:


I can get through the day with heating pads, ThermaCare, hot bath, etc.;
I take the pain pill only at bedtime when you shouldn't have a heating
pad turned on (and I've blistered when a ThermaCare bunched up and got
too hot while I was asleep, so I see why they say not to use those while
you sleep).

I have found that nothing beats a plain old fashioned hot water
bottle. I think I would have killed someone without mine after my
surgery last year. I sent DH home to get it after they took the hot
towels away and it made all the difference. AND you can sleep with
one (or two - I have one for my feet and one for my hands on cold
nights).

Elizabeth


Even better is a fluffy, warm, furkid, like Puff.


Lucille

On Nov 18, 12:29 pm, "Lucille" lzoltynospam@now at comcast..net
wrote:
wrote in message

...



On Nov 18, 12:49 am, Karen C in California wrote:

I can get through the day with heating pads, ThermaCare, hot bath, etc.;
I take the pain pill only at bedtime when you shouldn't have a heating
pad turned on (and I've blistered when a ThermaCare bunched up and got
too hot while I was asleep, so I see why they say not to use those while
you sleep).

I have found that nothing beats a plain old fashioned hot water
bottle. I think I would have killed someone without mine after my
surgery last year. I sent DH home to get it after they took the hot
towels away and it made all the difference. AND you can sleep with
one (or two - I have one for my feet and one for my hands on cold
nights).

Elizabeth

Even better is a fluffy, warm, furkid, like Puff.

Cash likes to sleep on the bed, but he has little tolerance for my pre-
sleep shifting and tossing. He gets up to cuddle, then he goes away
until I'm asleep, at which point he gets back up, so that he's there
in the morning.

Rarely, Harry asserts himself and gets up on the bed before Cash can.
When he does that, he's there to stay, but he's not much of a cuddler.

Elizabeth

On 11/18/08 1:52 PM, in article
,
" wrote:

On Nov 18, 12:29 pm, "Lucille" lzoltynospam@now at comcast..net
wrote:
wrote in message

...



On Nov 18, 12:49 am, Karen C in California wrote:

I can get through the day with heating pads, ThermaCare, hot bath, etc.;
I take the pain pill only at bedtime when you shouldn't have a heating
pad turned on (and I've blistered when a ThermaCare bunched up and got
too hot while I was asleep, so I see why they say not to use those while
you sleep).

I have found that nothing beats a plain old fashioned hot water
bottle. I think I would have killed someone without mine after my
surgery last year. I sent DH home to get it after they took the hot
towels away and it made all the difference. AND you can sleep with
one (or two - I have one for my feet and one for my hands on cold
nights).

Elizabeth

Even better is a fluffy, warm, furkid, like Puff.

Cash likes to sleep on the bed, but he has little tolerance for my pre-
sleep shifting and tossing. He gets up to cuddle, then he goes away
until I'm asleep, at which point he gets back up, so that he's there
in the morning.

Rarely, Harry asserts himself and gets up on the bed before Cash can.
When he does that, he's there to stay, but he's not much of a cuddler.

Elizabeth



Yes - Harry is a cuddly puppy. Too bad my life is so crazed that I can't get
down to see you and the puppies. Oh your DH too.


C

Elizabeth wrote
I have found that nothing beats a plain old fashioned hot water
bottle. I think I would have killed someone without mine after my
surgery last year. I sent DH home to get it after they took the hot
towels away and it made all the difference. AND you can sleep with
one (or two - I have one for my feet and one for my hands on cold
nights).

Once they were what your grannie used, now they are very much back in
style--in the stores in nice fleece covers, or knitted ones.
Environmentally friendly, and safe because they cool off during the night.
Dawne