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#1
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OT I'm alive
Poor Sooz,
So sorry to hear about your pain. Hope the relief has continued. Tina "Dr. Sooz" wrote in message ... Hi, guys, I'm back. After trying to wade through the millions of posts, I finally marked 'em all read. Good god! So I answered a few -- then gave up. Please let me know if I missed anything Important, or hurt anyone's feelings by ignoring them. My report: The pain has kicked my butt. I was out of commission for a while, and am crawling back slowly. (I mean, I'm in serious pain 24/7 -- it hasn't stopped for 15 1/2 years, not for a second -- so I'm no sissy.) It knocked me out of the game for a while. I'm pretty tough with pain itself -- it was the trembling, dizziness, and weakness when the pain gets too bad, *that* stopped me cold. I'm doing better the past month because of the new meds, but for one thing: It gave me new (physical) boundaries. I didn't really know where those boundaries are! So I overdid it, and maxed out. Now I have a better idea of where my pain boundaries are.......sheesh. I'm still a mess, but at least I'm a walking-around mess. My in-laws arrive from St.Louis at 4pm today for a weekend with us. Haw haw haw! The carpet-shampooers [temporarily] ruined our carpet -- we have to get it redone (next week, of course, *not* before the in-laws arrive....oh well). Our new furniture arrived yesterday, but we can't put it on the carpet. So the couch is in the kitchen (haw!), etc. Mercury got a bee sting in his paw last night during his late-night walkie, at the end of a jam-packed freeeeaky day (I'd tell you about it, but I do NOT want to relive it) -- ever try to get a stinger out of a reluctant 73-pound-dog's paw? And soak the paw afterward? Yikes. I'm so glad I started messing with his paws etc. when he was a tiny little pup. He was pretty good, even though it hurt. Then he got a Benadryl and went to sleep. At least I look cute. I finally got my hair cut. :-D Glad to be back. Please tell me if I mmissed anythig. I know about the Birth Of Beautiful Ophelia Clementine!!!! ~~ Sooz ------- ESBC You've got to ac-centuate the positive, E-liminate the negative, And latch on to the affirmative -- Don't mess with Mr. In-Between! |
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#2
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So sorry to hear about your pain. Hope the relief has continued.
Sweetie, your words touch me and warm me. Just to keep everyone abreast of what's been going on, as briefly as I possibly can -- I haven't been keeping it to myself on purpose. It's just been hard to know when to say anything. It's been so unresolved for a long time. To start with: when Kevin graduated law school in May 2002, it started a cascade of events from which there was no respite for me (or for him, but this is about me, me, ME!). Fibromyalgia reacts badly to stress, blah blah blah. A couple of the events were really hard on me physically, mentally, and emotionally -- not bad events, but demanding. The damp winter cold in the SF Bay Area made things worse. The fibro pain, and other symptoms, got gradually worse and worse and worse. I didn't notice it at first, and I had so much going on that I didn't notice it for a long time. Finally Kevin ended up in the hospital himself, with several scary events (including ambulances carrying him away twice). I lost a lot of sleep, really crucial for fibro folk. About a month after he got better, I noticed I had gotten so bad I wasn't getting out of bed anymore -- not because I was depressed (though I was!), more that the pain had completely beaten me and was ruling my every move. I wasn't able to make myself feel better -- I didn't have the energy to do the necessary stuff, but I also was unable to make any difference in the pain. Nothing worked. I saw my doctor, who helped with new meds (not painkillers, but an Rx that neurologically prevents pain). The first two months of the Rx made me sleep most of the time. I had to cancel everything.... dentist appointments, haircuts, bead classes, everything -- too hazardous to drive! It started to help. I was so grateful! Two weeks ago, I reached the full dosage of the meds (it takes a couple of months to slowly, gradually increase the dosage to therapeutic levels). Whew. I was starting to lose my usual personality; it was rough. I'm now starting to bead, be able to have Mercury for a real visit, get my hair cut again. And my teeth are really clean again! I had some ups and downs, and serious setbacks, during the gradual increase of the new meds. It was a struggle. The side effects are almost nonexistent, except for the (now past) sleepiness, but that wasn't true at first. The pain fluctuated without warning, and affected my morale a lot. I didn't bring news of it here, because I didn't know what was going on from one moment to the next. I was so confused, freaked, afraid, struggling, and really suffering that I didn't know what to say. My memory was totally screwed up (worse than usual) because I was using up all my energy trying to get through the next half hour. Thanks for the treats anyone sent me during this time. It really helped me not come completely unraveled. I was slow about thanking everyone, and not consistent in where I posted or emailed my gratitude. I may even have not-thanked someone, or more than one someone. I apologize if I did that. It's been indescribably awful; I don't know that it's over yet. I'm still kind of in shock. I feel like a different person. It just went on for way too long. If I'd known, last May, what I know now, I don't know that I'd have had the courage to put one foot in front of the other. I'm still gun-shy and not up to whatever "normal" is for me. That's the story. ~~ Sooz ------- ESBC Dr. Sooz's Bead Links http://airandearth.netfirms.com/soozlinkslist.html One of the advantages of being disorderly is that one is constantly making exciting discoveries. ~ A. A. Milne |
#3
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Dear God, Sooz. I hope the new meds continue to work for you and I am SO GLAD
that something was able to relieve all that. Love you. Becki "In between the moon and you, the angels have a better view of the crumbling difference between wrong and right.." -- Counting Crows |
#4
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Dear Sooz,
whatever it takes - keep it up. I am sure Mercury and Kevin are glad you are back to a more normal state... I hope, however, that the drug they are giving you is NOT neurotonin..... If it is - please give second thoughts to continuing it.... and contact me. Cheryl of A HREF="http://www.dragonbeads.com" DRAGON BEADS /A Flameworked beads and glass http://www.dragonbeads.com/ |
#5
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It started to help. I was so grateful! Two weeks ago, I reached the full
dosage of the meds (it takes a couple of months to slowly, gradually increase the dosage to therapeutic levels). Whew. I was starting to lose my usual personality; it was rough. I'm glad you are doing better now. It must of been a really horrible time for you. Jo Jo |
#6
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NOT neurotonin.....
If it is - please give second thoughts to continuing it.... and contact me. It's neurontin, not neurotonin (I've heard of both before). Uh oh....why? :-( ~~ Sooz ------- ESBC Dr. Sooz's Bead Links http://airandearth.netfirms.com/soozlinkslist.html One of the advantages of being disorderly is that one is constantly making exciting discoveries. ~ A. A. Milne |
#7
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It must of been a really horrible time for
you. It's not over yet. Of course, having it be *Over* isn't something anyone can deliver. I've just gotten my pain level down from an 8 - 9 to a 6 1/2 - 7, which I find I can deal with and still get a few things done here and there. Pain management is the biggest part of my life, unfortunately, and it's been that way for over 15 years. I'm doing great when I can finish a strung bracelet in 3 days! I'm the typical beading student who never, ever finishes a project in class. I hate that. I love to make stuff, no matter what, and I just don't have the stamina to get stuff done (this is the big reason behind my not being digi-camera fluent yet). I get frightened when the pain level creeps up to 8 again -- you know, what if it doesn't go down, like it didn't for the past year? I know, what-ifs are just stupid -- but dang, it's hard not to what-if when you have enough pain *already*. It twists everything else in your life. I get really scared. It already destroyed my work life, and my marriage, and lost me my dogs full-time. Sure, I was married to a creep who was enraged with me for being ill -- but if he could be like that, what other, milder versions of that will other, better people feel regarding me? It's scary on so many levels. ~~ Sooz ------- ESBC Dr. Sooz's Bead Links http://airandearth.netfirms.com/soozlinkslist.html One of the advantages of being disorderly is that one is constantly making exciting discoveries. ~ A. A. Milne |
#8
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Cheryl, not to horn in but Rich takes Neurontin for his diabetic
neuropathy. Is there something we should know that maybe we don't? Shelby Cheryl wrote: Dear Sooz, whatever it takes - keep it up. I am sure Mercury and Kevin are glad you are back to a more normal state... I hope, however, that the drug they are giving you is NOT neurotonin..... If it is - please give second thoughts to continuing it.... and contact me. Cheryl of A HREF="http://www.dragonbeads.com" DRAGON BEADS /A Flameworked beads and glass http://www.dragonbeads.com/ |
#10
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