No Pain!

I know. And all those years I could run around like a loon, even with
steroids, I couldn't keep weight on.

Me too. At 5' 7" I frequently dipped into a size 6 (even a 4). It wasn't
pretty.
~~
Sooz
-------
"Those in the cheaper seats clap. The rest of you rattle your jewelry." John
Lennon (1940 - 1980) Royal Varieties Performance
~ Dr. Sooz's Bead Links
http://airandearth.netfirms.com/soozlinkslist.html

snort

"Sooz is high... time to do laundry!"

Ah, younger days!

Haw! Yup. I used to take all her vintage dresses -- with all the intricate
detail -- and make them perfect. Then she'd wear 'em all, and back into the
loop we'd go.
~~
Sooz
-------
"Those in the cheaper seats clap. The rest of you rattle your jewelry." John
Lennon (1940 - 1980) Royal Varieties Performance
~ Dr. Sooz's Bead Links
http://airandearth.netfirms.com/soozlinkslist.html

Is
exhaustion part of it? I'm so tired I could just scream but it's too much
effort.

Oh YES. Managing pain is incredibly exhausting. (No one ever tells you this.)
Which is one of the reasons you feel better with painkillers -- it's far less
tiring! Pain is so DRAINING. "Tired" doesn't begin to cover it.
~~
Sooz
-------
"Those in the cheaper seats clap. The rest of you rattle your jewelry." John
Lennon (1940 - 1980) Royal Varieties Performance
~ Dr. Sooz's Bead Links
http://airandearth.netfirms.com/soozlinkslist.html

YES! Pain is exhausting. Both physically and mentally. This is why Sooz
emphasizes the importance of reducing pain quickly.

When I talk about Depression, I often tell people to imagine a 3 year old
being taken shopping for 5 or 6 hours. She'll get physically and mentally
tired from all the new information, all the standing quietly, etc. And her
symptoms will be very much the same as Depression -- anger, weeping, unable
to think clearly, sleep disturbance, etc.

So yes, pain is not only exhausting, but it also results in Depression.

Tina


"Debbie B" wrote in message
ink.net...
I know. I'm waiting for my appt. on the 26th with my neurologist. Is
exhaustion part of it? I'm so tired I could just scream but it's too much
effort.

--
Debbie (New Mexico)
Life is too short
"Dr. Sooz" wrote in message
...
Debbie, avoiding meds for the pain isn't therapeutic. Trust me, I know.

~ Enduring pain as a virtue is a myth. It's very bad for your body, and
your
health. It creates more stress, which in turn creates worse health.

~ If you put up with pain, feeling it instead of masking it, you can end
up
with fibromyalgia or other neurological problems. It's pointless to
suffer,
unless you want to get sicker. It's better for you, long term and short
term,
to be a bit woozy than in pain.

~ If you don't take the meds at the first onset of the pain, it doesn't
work
very well. You should take them at the first hint.

Being "tough" about one's pain is not wise. It's a myth perpetuated for
years
and years, based on this country's Puritan founders' views. And those
people
were crazy! Do you really want to do that? Be crazy?

Plus, people in pain are very hard on the ones who love them. If you
won't do
it for yourself, do it for those around you.

maybe I could walk and laugh more.
~~snipped~~
haven't even taken any meds
for the pain. lol


~~
Sooz
-------
"Those in the cheaper seats clap. The rest of you rattle your jewelry."
John
Lennon (1940 - 1980) Royal Varieties Performance
~ Dr. Sooz's Bead Links
http://airandearth.netfirms.com/soozlinkslist.html


---
Outgoing mail is certified Virus Free.
Checked by AVG anti-virus system (http://www.grisoft.com).
Version: 6.0.682 / Virus Database: 444 - Release Date: 5/13/2004

That is soooo funny!


-Kalera
http://www.beadwife.com
http://www.snipurl.com/kebay


Dr. Sooz wrote:
snort

"Sooz is high... time to do laundry!"

Ah, younger days!


Haw! Yup. I used to take all her vintage dresses -- with all the intricate
detail -- and make them perfect. Then she'd wear 'em all, and back into the
loop we'd go.
~~
Sooz
-------
"Those in the cheaper seats clap. The rest of you rattle your jewelry." John
Lennon (1940 - 1980) Royal Varieties Performance
~ Dr. Sooz's Bead Links
http://airandearth.netfirms.com/soozlinkslist.html

Oh god. I hope you get something that helps a lot! It's horrible that
you just have to live with it that long.

-Kalera
http://www.beadwife.com
http://www.snipurl.com/kebay


Debbie B wrote:
I know. I'm waiting for my appt. on the 26th with my neurologist. Is
exhaustion part of it? I'm so tired I could just scream but it's too much
effort.

I am SO glad you're not in pain anymore!

-Kalera
http://www.beadwife.com
http://www.snipurl.com/kebay


Jalynne wrote:
AMEN, sister. Now that I have no pain...the weight is coming off with very little
effort. GEEEE, i wonder why that is??? (dripping sarcasm included for emphasis)

Oh my GOD I hope they can help! And I wish you didn't have to wait so
long... and why exactly is your case considered non-critical???

-Kalera
http://www.beadwife.com
http://www.snipurl.com/kebay


Kathy N-V wrote:

I know. And all those years I could run around like a loon, even with
steroids, I couldn't keep weight on. (Except in the boobage - I am cursed)

But Bam - after the heart attack, and the sudden worsening of my
osteoporosis, and all the broken vertebrae, I can't move around. I cut my
food intake sharply, but since I can't eat negative food, I am having all the
Cushingoid symptoms of anyone on long term steroid use. Duh.

Let's see what happens after I see the surgeon (in June) and the Pain
Specialist (in August). These folks are supposed to be geniuses at what they
do, and they have long waiting lists for non-critical cases.

Kathy N-V

Um, ouch. I'm 5'3" and at size 6 I was almost skeletal.

"Pointier than a sack full of wet mice" as a friend says.

-Kalera
http://www.beadwife.com
http://www.snipurl.com/kebay


Dr. Sooz wrote:
I know. And all those years I could run around like a loon, even with
steroids, I couldn't keep weight on.


Me too. At 5' 7" I frequently dipped into a size 6 (even a 4). It wasn't
pretty.
~~
Sooz
-------
"Those in the cheaper seats clap. The rest of you rattle your jewelry." John
Lennon (1940 - 1980) Royal Varieties Performance
~ Dr. Sooz's Bead Links
http://airandearth.netfirms.com/soozlinkslist.html

Listen to the dietician... as my dad says, doctors kill people.
Forget the weight, as weight is not a good measure of health.

(I am not anti-doctor, but they really have little experience managing
health, only illness.)

-Kalera
http://www.beadwife.com
http://www.snipurl.com/kebay


Shirley Shone wrote:
I totally agree with you Kalera.
The dietician says I do not eat enough. The doctor tells me to lose weight.
The dietician says if I eat less I could suffer from malnutrition.
If I exercise I could have a heart attack. I have meds to slow me down.
So I have not a cat in hells chance of losing weight. It is like running
around in a circle, no end to it.
Shirley




In message , Kalera Stratton
writes

Argh, this made me mad. Why don't people understand that people with
illnesses and handicaps that make them unable to be active get fat
because they CAN'T ****ING EXERCISE? And often have to take pills that
make them gain weight?

"Oh, yeah honey, just get out there and take that weight off!" 'Cause
clearly you're be capable of going for a daily jog, right?

-Kalera
http://www.beadwife.com
http://www.snipurl.com/kebay


Kathy N-V wrote:

On Fri, 14 May 2004 19:43:24 -0400, Jan G wrote
(in message . net):

Kathy, great news! What do you think helped the most? The meds?

A combination of things - meds, PT, a little weight loss and lots
of powerful vibes from the people here on RCB.
Amazingly, I wrote this last week, when I think I hit my lowest point:
-----------------------
The reality of my life is that I often have to crawl to get upstairs,
and pay for even the slightest exertion with days of pain. Or, I
can take the painkillers and be zoned out, those are my choices.
I've gotten a lot tougher - pain that would have made me cry years
ago barely registers in my consciousness these days. I spent a day
with [a friend] a couple of weeks ago - and spent five days in bed
afterward, because I couldn't even walk to the other end of the house
It infuriates me to have people who have no idea what it's like to
live in my skin tell me that I need to lose weight. Think I don't
know that? Think I don't cringe when I see myself in the mirror and
compare it to the person I used to be? What magic wand can I wave to
make it possible for me to walk up the thirteen steps to my house?
Forget running a marathon - I'd like to be to sit through one of
DD's school presentations. Once I gain that much progress, I'll
worry about losing weight, okay?
----------------------------
That was in response to someone telling me that I "need to get
active and take off those pounds. Just stop eating so damn much."
She didn't get it. I've been on heavy duty steroids for more than
20 years, and am 100 lbs. heavier than my pre-steroid weight. I
used eat everything in sight back then, and never gained an ounce.
Now, I eat one meal a day, because the pain makes me nauseated most
of the time. If I stop the steroids, I die - period. Not too many
choices there - I'll walk through burning coals to be there while my
daughter grows up. I suspect that DD thinks that having a fat mother
is way better than having a dead one. Being there for my family is my
sole motivation. I'm a little sore tonight - I had to test my new
meds by driving a couple of miles, because Bob is out of town. But
I've been able to skip the Vicodin for three days, and that's
wonderful. Even if it doesn't last, this respite has been
wonderful. It's like a beautiful sunny day after a long, long winter.
Kathy N-V