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#1
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OT More on the NightMist Saga
I am all poked full of holes, have three hospital bracelets, and my back
is just killing me from laying about on gurneys and hospital beds. So Wednesday I went and had my bloodwork done, and the ultrasounds, and the chest x-ray. If I have to fast for tests I am by gosh only going to do it once! Wednesday evening, yes after office hours, the clinic called and said that the doctor wanted to see me first thing in the morning. I did not feel that this boded well. Much to my surprise, what she wanted to see me about was my hematocrit. I was _very_ anemic, the actual result on the test was 4. She told me "I am not understanding how you are standing up and walking around when you are this anemic!" Apparently 4 on that test is bad enough to warrant drastic action. Next thing you know I am in the ER with half a ream of paperwork. I spent about 12 hours in The ER being poked and prodded by five different doctors. One of them wanted to do surgery immediately and so they acted accordingly and starved me all day. They had me admitted by evening and I spent the night in the hospital getting two units of blood, while another half dozen doctors went over my tests. At least they fed me after I was admitted. This morning I saw two more doctors and they discharged me. I go up to Roswell on Tuesday. Apparently the mass in my tummy is so huge that they could not tell where it started out from with just the ultrasound, so they did a CAT scan while I was in the ER. According to the doctors I saw this morning, all the tests have pretty much narrowed it down to three possibilities, but until they actually are looking inside me and then do pathology on the mass they cannot be sure exactly which one it is. The options a An unusual type of fibroid, endometriosis, or ovarian cancer. I am rooting for fibroids. Now I am going to go take a nap as they didn't finish getting the blood in me until about 2:00 in the morning, and the whole time I was hooked up to it they were coming in every half hour to check me out and make sure that I wasn't having a bad reaction. Tired am I! NightMist -- I'm raising a developmentally disabled child. What's your superpower? |
#2
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OT More on the NightMist Saga
What a nightmare Nightmist! I hope it's just fibroids as well and I hope
they can get a result for you asap, so you're not sitting in limbo waiting to hear. Pauline Northern California "NightMist" wrote in message ... I am all poked full of holes, have three hospital bracelets, and my back is just killing me from laying about on gurneys and hospital beds. So Wednesday I went and had my bloodwork done, and the ultrasounds, and the chest x-ray. If I have to fast for tests I am by gosh only going to do it once! Wednesday evening, yes after office hours, the clinic called and said that the doctor wanted to see me first thing in the morning. I did not feel that this boded well. Much to my surprise, what she wanted to see me about was my hematocrit. I was _very_ anemic, the actual result on the test was 4. She told me "I am not understanding how you are standing up and walking around when you are this anemic!" Apparently 4 on that test is bad enough to warrant drastic action. Next thing you know I am in the ER with half a ream of paperwork. I spent about 12 hours in The ER being poked and prodded by five different doctors. One of them wanted to do surgery immediately and so they acted accordingly and starved me all day. They had me admitted by evening and I spent the night in the hospital getting two units of blood, while another half dozen doctors went over my tests. At least they fed me after I was admitted. This morning I saw two more doctors and they discharged me. I go up to Roswell on Tuesday. Apparently the mass in my tummy is so huge that they could not tell where it started out from with just the ultrasound, so they did a CAT scan while I was in the ER. According to the doctors I saw this morning, all the tests have pretty much narrowed it down to three possibilities, but until they actually are looking inside me and then do pathology on the mass they cannot be sure exactly which one it is. The options a An unusual type of fibroid, endometriosis, or ovarian cancer. I am rooting for fibroids. Now I am going to go take a nap as they didn't finish getting the blood in me until about 2:00 in the morning, and the whole time I was hooked up to it they were coming in every half hour to check me out and make sure that I wasn't having a bad reaction. Tired am I! NightMist -- I'm raising a developmentally disabled child. What's your superpower? |
#3
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OT More on the NightMist Saga
On 23/09/2011 18:10, NightMist wrote:
I am all poked full of holes, have three hospital bracelets, and my back is just killing me from laying about on gurneys and hospital beds. So Wednesday I went and had my bloodwork done, and the ultrasounds, and the chest x-ray. If I have to fast for tests I am by gosh only going to do it once! Wednesday evening, yes after office hours, the clinic called and said that the doctor wanted to see me first thing in the morning. I did not feel that this boded well. Much to my surprise, what she wanted to see me about was my hematocrit. I was _very_ anemic, the actual result on the test was 4. She told me "I am not understanding how you are standing up and walking around when you are this anemic!" Apparently 4 on that test is bad enough to warrant drastic action. Next thing you know I am in the ER with half a ream of paperwork. I spent about 12 hours in The ER being poked and prodded by five different doctors. One of them wanted to do surgery immediately and so they acted accordingly and starved me all day. They had me admitted by evening and I spent the night in the hospital getting two units of blood, while another half dozen doctors went over my tests. At least they fed me after I was admitted. Phew! I'd have been gnawing the leg off any passing stranger that didn't move fast enough by then! Have they any idea how you got so anemic? I thought you had a fairly well balanced diet... or do they think it might be something to do with the mass? This morning I saw two more doctors and they discharged me. I go up to Roswell on Tuesday. Apparently the mass in my tummy is so huge that they could not tell where it started out from with just the ultrasound, so they did a CAT scan while I was in the ER. According to the doctors I saw this morning, all the tests have pretty much narrowed it down to three possibilities, but until they actually are looking inside me and then do pathology on the mass they cannot be sure exactly which one it is. The options a An unusual type of fibroid, endometriosis, or ovarian cancer. I am rooting for fibroids. Oh, this, so much! Whatever gods they are better be working hard on this, or there will b some serious hell to pay! Now I am going to go take a nap as they didn't finish getting the blood in me until about 2:00 in the morning, and the whole time I was hooked up to it they were coming in every half hour to check me out and make sure that I wasn't having a bad reaction. Tired am I! I'll bet. Sleep well, love, and keep us posted. We are all keeping you close over this one. And good luck on Tuedsy. Thinking of you will keep me grounded over the latest Hairy Eyeball examination. Back to the Moorfield for a check-up. -- Kate XXXXXX R.C.T.Q Madame Chef des Trolls Lady Catherine, Wardrobe Mistress of the Chocolate Buttons http://www.katedicey.co.uk Click on Kate's Pages and explore! |
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OT More on the NightMist Saga
I rather suspect endometriosis; just sounds like it to me and what do I
know? I guess I'll put on my Pollyanna hat and be glad for you that you've got all of that awful testing behind you. About 5 months after my ordeal, Mr. Esther came home to find me out digging up the backyard. "Who are you and what have you done with my wife?" he asked because I had felt so bad for so many years. Nightmist! we just might be fixing to have a new you. You're going to love feeling good again. Polly "Kate XXXXXX" wrote in message o.uk... On 23/09/2011 18:10, NightMist wrote: I am all poked full of holes, have three hospital bracelets, and my back is just killing me from laying about on gurneys and hospital beds. So Wednesday I went and had my bloodwork done, and the ultrasounds, and the chest x-ray. If I have to fast for tests I am by gosh only going to do it once! Wednesday evening, yes after office hours, the clinic called and said that the doctor wanted to see me first thing in the morning. I did not feel that this boded well. Much to my surprise, what she wanted to see me about was my hematocrit. I was _very_ anemic, the actual result on the test was 4. She told me "I am not understanding how you are standing up and walking around when you are this anemic!" Apparently 4 on that test is bad enough to warrant drastic action. Next thing you know I am in the ER with half a ream of paperwork. I spent about 12 hours in The ER being poked and prodded by five different doctors. One of them wanted to do surgery immediately and so they acted accordingly and starved me all day. They had me admitted by evening and I spent the night in the hospital getting two units of blood, while another half dozen doctors went over my tests. At least they fed me after I was admitted. Phew! I'd have been gnawing the leg off any passing stranger that didn't move fast enough by then! Have they any idea how you got so anemic? I thought you had a fairly well balanced diet... or do they think it might be something to do with the mass? This morning I saw two more doctors and they discharged me. I go up to Roswell on Tuesday. Apparently the mass in my tummy is so huge that they could not tell where it started out from with just the ultrasound, so they did a CAT scan while I was in the ER. According to the doctors I saw this morning, all the tests have pretty much narrowed it down to three possibilities, but until they actually are looking inside me and then do pathology on the mass they cannot be sure exactly which one it is. The options a An unusual type of fibroid, endometriosis, or ovarian cancer. I am rooting for fibroids. Oh, this, so much! Whatever gods they are better be working hard on this, or there will b some serious hell to pay! Now I am going to go take a nap as they didn't finish getting the blood in me until about 2:00 in the morning, and the whole time I was hooked up to it they were coming in every half hour to check me out and make sure that I wasn't having a bad reaction. Tired am I! I'll bet. Sleep well, love, and keep us posted. We are all keeping you close over this one. And good luck on Tuedsy. Thinking of you will keep me grounded over the latest Hairy Eyeball examination. Back to the Moorfield for a check-up. -- Kate XXXXXX R.C.T.Q Madame Chef des Trolls Lady Catherine, Wardrobe Mistress of the Chocolate Buttons http://www.katedicey.co.uk Click on Kate's Pages and explore! |
#5
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OT More on the NightMist Saga
My Wings are on their way.
I'm glad they DID the tests pronto instead of having you come back come back come back to each Dr on their schedule. Sometimes, those Drs do get it right. Hope this next set are just as persistent and you're better than before. Know what very anemic is....only had it once but was strictly informed that RED MEAT/high protein would be a staple in my diet the rest of my life. NEVER had it as a problem since. Butterfly ((((HUGS)))) |
#6
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OT More on the NightMist Saga
On Fri, 23 Sep 2011 15:13:56 -0700, Butterfly-Wings wrote:
My Wings are on their way. I'm glad they DID the tests pronto instead of having you come back come back come back to each Dr on their schedule. Sometimes, those Drs do get it right. Hope this next set are just as persistent and you're better than before. Know what very anemic is....only had it once but was strictly informed that RED MEAT/high protein would be a staple in my diet the rest of my life. NEVER had it as a problem since. Butterfly ((((HUGS)))) I have had just the opposite experience with anemia. I used to be chronically anemic, then I went vegetarian and from then until now it hasn't been a problem. Dry beans are an excellent source of iron and they make up a large part of our diet. If I were an ignorant vegetarian it would very likely be a problem, but we actually studied the nutrition of it when we made the leap. My current troubles with it are very likely the result of several different things that have nothing to do with my actual diet. I will give more details in my response to Kate. *basking in Butterfly hugs* mmmm...I needed that Thanks NightMist -- I'm raising a developmentally disabled child. What's your superpower? |
#7
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OT More on the NightMist Saga
Hi folks. This is NM's DH. I haven't done newsgroups for years and am
not really familiar with this software she uses, so I'll probably make a mess of this, but she wanted news posted. She made it through surgery and her vitals are reasonably good. She was awake for a while until they got pain meds actually going and all that. On hearing that they were going to give her a couple units of whole blood, she said that if she starts to sparkle, stake her quick before she starts angst-ing. I'll assume that you know her well enough that no explanations on that quip are necessary. Ok, the mass was large. From her doctor's precision method of holding up his hands to show about how big, apparently about as long as a football. Probably didn't have any laces or stripes on it like a football, but you get the general idea. The doctor says it was a cancerous tumour. They apparently got it all, and also took out some lymph nodes that were near it just to be safe. He was very pleased with her vital signs and how fast she was recovering from the surgery. She's in ICU, but they say that's more because of a lack of beds in the normal place they keep beds, and normally they would have put her in a regular room. If I understand the doctor correctly, she may be coming home as soon as Saturday. It was definitely a doozy of a day. -- I'm raising a developmentally disabled child. What's your superpower? |
#8
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OT More on the NightMist Saga
On Fri, 23 Sep 2011 20:05:17 +0100, Kate XXXXXX wrote:
On 23/09/2011 18:10, NightMist wrote: Much to my surprise, what she wanted to see me about was my hematocrit. I was _very_ anemic, the actual result on the test was 4. She told me "I am not understanding how you are standing up and walking around when you are this anemic!" Apparently 4 on that test is bad enough to warrant drastic action. Next thing you know I am in the ER with half a ream of paperwork. I spent about 12 hours in The ER being poked and prodded by five different doctors. One of them wanted to do surgery immediately and so they acted accordingly and starved me all day. They had me admitted by evening and I spent the night in the hospital getting two units of blood, while another half dozen doctors went over my tests. At least they fed me after I was admitted. Phew! I'd have been gnawing the leg off any passing stranger that didn't move fast enough by then! Have they any idea how you got so anemic? I thought you had a fairly well balanced diet... or do they think it might be something to do with the mass? They didn't suggest a cause, they were too busy freaking out. Though they wrote me some scripts that make me think that they are in agreement with me about the causes. My theory is it is the stress on my body combined with my mutation. At the base of it the mutation causes insufficiency of the folic aid metabolism. If your body is shorted on folic acid you tend to get what is called folic acid deficient anemia. You can sit and gnaw on a railroad spike all day and the iron won't help because without enough folic acid your body will not use it properly. Combine that with the facts that my insides are squished up enough that I cannot eat a proper meal at a go, and during my cycles I have been bleeding hugely, and you have trouble. I have already been supplementing both folic acid (at a previously prescribed level, a whole milligram daily), and iron. The doctors doubled my folic acid supplement, and hugely multiplied the iron. Tired am I! I'll bet. Sleep well, love, and keep us posted. We are all keeping you close over this one. And good luck on Tuedsy. Thinking of you will keep me grounded over the latest Hairy Eyeball examination. Back to the Moorfield for a check-up. Hey best of luck with that eyeball! Eyes are serious business when something goes wrong, especially when you use them as intensely as you do! NightMist -- I'm raising a developmentally disabled child. What's your superpower? |
#9
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OT More on the NightMist Saga
NM, that sounds very similar to what the situation was with my
fibroids. They couldn't do ultrasound or pelvic because they were so huge. The anemia was so bad the dr didn't understand how I was working or even out of bed. And then they told me if I had a car accident, I would never make it to the hospital. When they did the surgery [after 3 months of trying to get me into medical menopause], the fibroids weighed 12 pounds. Really hoping the issue for you is fibroids, the least of the three evils. Ginger in CA On Sep 23, 6:35*pm, NightMist wrote: On Fri, 23 Sep 2011 20:05:17 +0100, Kate XXXXXX wrote: On 23/09/2011 18:10, NightMist wrote: Much to my surprise, what she wanted to see me about was my hematocrit.. I was _very_ anemic, the actual result on the test was 4. *She told me "I am not understanding how you are standing up and walking around when you are this anemic!" *Apparently 4 on that test is bad enough to warrant drastic action. *Next thing you know I am in the ER with half a ream of paperwork. *I spent about 12 hours in The ER being poked and prodded by five different doctors. *One of them wanted to do surgery immediately and so they acted accordingly and starved me all day. *They had me admitted by evening and I spent the night in the hospital getting two units of blood, while another half dozen doctors went over my tests. *At least they fed me after I was admitted. Phew! *I'd have been gnawing the leg off any passing stranger that didn't move fast enough by then! *Have they any idea how you got so anemic? *I thought you had a fairly well balanced diet... *or do they think it might be something to do with the mass? They didn't suggest a cause, they were too busy freaking out. *Though they wrote me some scripts that make me think that they are in agreement with me about the causes. My theory is it is the stress on my body combined with my mutation. At the base of it the mutation causes insufficiency of the folic aid metabolism. If your body is shorted on folic acid you tend to get what is called folic acid deficient anemia. *You can sit and gnaw on a railroad spike all day and the iron won't help because without enough folic acid your body will not use it properly. *Combine that with the facts that my insides are squished up enough that I cannot eat a proper meal at a go, and during my cycles I have been bleeding hugely, and you have trouble. I have already been supplementing both folic acid (at a previously prescribed level, a whole milligram daily), and iron. *The doctors doubled my folic acid supplement, and hugely multiplied the iron. Tired am I! I'll bet. *Sleep well, love, and keep us posted. *We are all keeping you close over this one. *And good luck on Tuedsy. *Thinking of you will keep me grounded over the latest Hairy Eyeball examination. *Back to the Moorfield for a check-up. Hey best of luck with that eyeball! Eyes are serious business when something goes wrong, especially when you use them as intensely as you do! NightMist -- I'm raising a developmentally disabled child. *What's your superpower? |
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OT More on the NightMist Saga
Ginger in CA wrote:
NM, that sounds very similar to what the situation was with my fibroids. They couldn't do ultrasound or pelvic because they were so huge. The anemia was so bad the dr didn't understand how I was working or even out of bed. And then they told me if I had a car accident, I would never make it to the hospital. When they did the surgery [after 3 months of trying to get me into medical menopause], the fibroids weighed 12 pounds. Really hoping the issue for you is fibroids, the least of the three evils. Ginger in CA I have two fibroids that gave me hell. The little pests are about 2 cm in size. I can't imagine a 12 lb one. Bled like crazy, was anemic and finally was able to go to the doctor for it. We didn't have insurance and I thought I was in perimenopause. This about 9 or 10 years ago. So at 52 I am still on birth control pills to keep the fibroids under control. I still don't have any signs of perimenopause. Mary Helen in Arizona |
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